Patient Resources
Helpful Links
The following links are organizations and sites that we believe will be of benefit to our patients. Below you will find a brief description of some of these sites:
» American Association of Kidney Patients (AAKP)
The American Association of Kidney Patients (AAKP) exists to serve the needs, interests, and welfare of all kidney patients and their families. The site offers information on education, membership, and the AAKP Patient plan, which provides kidney patients and their family members with a comprehensive guide to kidney disease and treatment.» American Kidney Fund (AKF)
The American Kidney Fund (AKF) is a national voluntary health organization providing direct financial assistance for the benefit of kidney patients supported by comprehensive educational programs, clinical research and community service projects. The AKF was recently named as one of the "Top Ten Best Health Charities" by the Physicians Committee for Responsible Medicine.» National Kidney Foundation (NKF)
The National Kidney Foundation Web site provides information on organ donation, renal and transplant public policy, and professional education programs. Message boards enable transplant recipients and donor families to communicate with peers and friends.» Dialysis & Transplantation
Dialysis & Transplantation Web site caters to the entire renal care community. Features include an archive of clinical articles as presented in D&T, including the full text, abstract, and all associated tables, figures, and references. The site also houses: "The List," D&T's exclusive, international directory of dialysis centers that accept traveling patients; a Renal Care News section; a Calendar section; and a 6-year Index of Articles that have appeared in D&T, broken down by Author and Subject.» Kidneytimes.com (RSN)
The Renal Support Network (RSN) is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease (CKD). The Renal Support Network values people with kidney disease and helps them become self-sufficient through education, advocacy, and hope for a better tomorrow.» RenalInfo
RenalInfo offers information about kidney failure, including causes, symptoms, tests, ideas to help maintain health, and a comprehensive presentation of kidney disease treatment choices.» Hypertension, Dialysis, and Clinical Nephrology (HDCN)
HDCN provides up-to-date, selected information on renal disorders and their treatment (hemodialysis, peritoneal dialysis), and about hypertension, dialysis, and clinical nephrology topics.» Kidney & Urology Foundation of America
The Kidney and Urology Foundation of America is a national, not-for-profit organization dedicated to helping people avoid the debilitating effects of kidney and urologic diseases.» Kidney School
Kidney School is an interactive, Web-based learning program in 10-minute modules. It was designed to help people learn what they need to know to understand kidney disease and its treatment, adjust to kidney disease, make good medical choices, and live as fully as possible.» Life Options Rehabilitation Program
The Life Options Rehabilitation Program is dedicated to helping people live long and live well despite kidney disease. Life Options is actively engaged in research, partnering with other organizations, offering technical support and developing high-quality, research-based educational materials for kidney patients and renal professionals.» National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases, this site provides many patient education materials on kidney and urologic disorders, as well as on diabetes, digestive disorders, and nutrition.» Nephron Information Center
The Nephron Information Center Web site was designed as a tool to better understand kidney disease, and more importantly, to help address its major causes-diabetes and hypertension. This site offers information about legislation, renal and government organizations, research grants, and clinical trials.» Renal Support Network
The Renal Support Network is a nonprofit organization dedicated to facilitating communication among people who live with kidney disease and their families.» RenalWEB
RenalWEB is the most visited dialysis-related Web site, and is the "daily newspaper" for the dialysis and nephrology community. RenalWEB specializes in organizing breaking news, medical resources, product information, and other Web sites. Visitors can explore issues and current events at any level, from brief overview to in-depth analyses.» U.S. Renal Data System (USRDS)
The USRDS is a national data system that collects, analyzes, and distributes information about end-stage renal disease in the U.S. The USRDS is funded directly by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) in conjunction with the Centers for Medicare & Medicaid Services (CMS).» American Diabetes Association
The American Diabetes Association is the nation's leading nonprofit health organization providing diabetes research, information and advocacy. Founded in 1940, the American Diabetes Association conducts programs in all 50 states and the District of Columbia, reaching hundreds of communities.» Food and Drug Administration (FDA)
Provides news about recent FDA approvals for marketing or testing of drugs and medical devices. A search engine allows the user to find information on drugs or devices to treat such conditions as renal failure.» TransWeb
TransWeb is a not-for-profit educational Web site serving the world transplant community. Based at the University of Michigan, TransWeb features news and events, real people's experiences, the top 10 myths about organ donation, a donation quiz, and a large collection of questions and answers, as well as a reference area with everything from articles to videos.» U.S. National Library of Medicine (NLM)
The NLM is the world's largest medical library, providing health information, library services, research programs, and exhibits. The MEDLINE database, consisting of more than 11 million references and abstracts from scientific journals. PubMed is used and provides links to full-text articles and other related resources. MEDLINE Plus organizes the information into health-related topics, provides drug information, medical dictionaries, directories of doctors and hospitals, and many other resources.
